Double figure shits that is. Literally!💩
Let me explain. I started Nerlynx on Monday night (that’s the daily oral HER2 protein blocker trial I’ve been banging on about and really nervous to start. With good reason as it turns out).
What looked like on Tuesday just a morning bout of hot sweats, cramps during the night and horrible gastro episodes that lasted 15 minutes each morning, I thought to myself I got this. By this morning however I felt constipated, so I reduced my Imodium. By 8pm I’m into double figures with as Angie (from Bachy) just said “nothing more to give”. Needless to say I’m back on ‘high gear/full mode’ Imodium doses for the time being!
Some of the other side effects include tummy cramps and morning sickness (apparently… what the hell would I know). Which brings me to an interesting segway. Never could have children, no ovaries and no periods for 25 years and now I’m on hormone blockers, cramps like period pain you would not believe and fucking morning sickness? What cruel joke are you playing Miss Universe?
On the up side I’m totally off my food, but when I am eating I am still determined to eat well. 100g off my 5 week goal, weigh in due next Thursday (remember the goal is to lose unhealthy visceral fat, getting healthy not skinny, so that’s why I’m excited).
BTW haven’t number twoed (which currently feels like number one!) since restocking my Imodium with a double dose tonight🤣
Today I met with two lovely ladies I used to work with. Lets call them 2KW’s (two Kay women ha ha ha). 3 hours later and I had the most superb time, what a date!
Later that day I tried to get Murray in the pool for his first swim and copped a split lip for my efforts.
Happy days xx
Published by Debra Mesecke
I was 21 and I was planning a wedding, buying a house and had a job interview for the job of my dreams on my 22nd birthday. You see I was being made redundant and had to find a new job by August. Especially with the new mortgage now. It was April. I worked for CML and my new job was a done deal. All I needed was a medical. And with that, just like that....my life was turned upside down and I was diagnosed with CML, ha ha, I know the irony. My hematologist had a laugh at that too. I had Chronic Myeloid Leukeamia, which was normally reserved for 70 year old men. Quite rare for a young adult to get, so how would they treat it? I underwent two separate trials until finally it was decided my best chance of survival (all be it only 50% chance), would be a MUD BMT (matched unrelated bone marrow transplant), now known as VUD Allograt (volunteer unrelated donor). I was told 21 years ago the chance of finding a match was 1 in 20,000 (and that is everyone was on the bone marrow donor registry). Scary odds. So being the risk taker I am I said "go for it". They found a match and that was my first miracle in this journey. The second miracle was, it worked - new blood type, two different DNA profiles and the miracle of medicine was reborn inside me. The third miracle is my son.
25 years on, I now face a new challenge. Breast Cancer. Certainly not the first person to have cancer, to have invasive ductile cancer, hormone receptive and HER2 +, or to even have a dual diagnosis. But this is not another Webiste about a cancer survivor, this is just my excuse to finally publicly write. Along the way I am hoping I can share some insights I have learnt over the years and at the same time, give you a good belly laugh.
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