That’s what has happened to Todd. I think I’ve broken him. He’s so buggered with his own nephritis that he fell over yesterday cleaning the pool. We had a big fight yesterday about who was more tired (pretty sure with a Hb of 95 I had to have won). But then we get to Foodland and they’ve got Greek day happening and with his mysophonia in full swing and the loud music and people everywhere blocking our path he turned into just a typical grumgy old man. Don’t worry we’re not donzos quite yet…but you can certainly see how a couple of chronic illnesses can rip people apart.
So with that we worked our respective buts off trying to achieve normality…shopping, pool, garden, washing, tidying, dog walk, meeting overdue friend for a drink and then on to other friends to plan cruise, and this morning think I may have over done it. Have every symptom this new chemo has to offer and then some: (takes me back to Interferon days!)
Tingly and numb fingertips
Total body aches & pains
Complete lethargy & exhaustion
Combine with hot flushes, adult onset hayfever & I think I now have a cold.
If it’s not my body temperature irregularities waking me up, it’s the dam partners’s snoring. Combine that with zyrech and I feel like a very sick zombie.
On the up side it’s Sunday & only 11 more of these treatments. Next one tomorrow. 1st time on my own.
Happy days xx stay positive, it could always be worse.
RIP: Matt Jackson
Published by Debra Mesecke
I was 21 and I was planning a wedding, buying a house and had a job interview for the job of my dreams on my 22nd birthday. You see I was being made redundant and had to find a new job by August. Especially with the new mortgage now. It was April. I worked for CML and my new job was a done deal. All I needed was a medical. And with that, just like that....my life was turned upside down and I was diagnosed with CML, ha ha, I know the irony. My hematologist had a laugh at that too. I had Chronic Myeloid Leukeamia, which was normally reserved for 70 year old men. Quite rare for a young adult to get, so how would they treat it? I underwent two separate trials until finally it was decided my best chance of survival (all be it only 50% chance), would be a MUD BMT (matched unrelated bone marrow transplant), now known as VUD Allograt (volunteer unrelated donor). I was told 21 years ago the chance of finding a match was 1 in 20,000 (and that is everyone was on the bone marrow donor registry). Scary odds. So being the risk taker I am I said "go for it". They found a match and that was my first miracle in this journey. The second miracle was, it worked - new blood type, two different DNA profiles and the miracle of medicine was reborn inside me. The third miracle is my son.
25 years on, I now face a new challenge. Breast Cancer. Certainly not the first person to have cancer, to have invasive ductile cancer, hormone receptive and HER2 +, or to even have a dual diagnosis. But this is not another Webiste about a cancer survivor, this is just my excuse to finally publicly write. Along the way I am hoping I can share some insights I have learnt over the years and at the same time, give you a good belly laugh.
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